Lupus (systemic lupus erythematosus) is a chronic autoimmune disease that can cause inflammation, pain and tissue damage in your body. There are other types of lupus, but systemic lupus erythematosus is the most common and most serious type. The disease can affect various organs such as the skin, kidneys, heart, lungs, nerves or blood cells. Lupus can progress rapidly and unpredictably.
When you are having lupus symptoms, you are experiencing a flare or relapse. When the symptoms subside, you are in remission. There is no way to tell when a flare will occur or how severe it will be, making it essential to recognize the markers of flares. While it can vary from individual to individual, common signs include joint pain, a rash, a fever or feeling more tired. When you see any of these signs, take steps to control your symptoms.
What can trigger a lupus flare?
Identifying and managing potential triggers can help reduce the frequency and severity of relapses. Causes of flares may include:
- Exposure to ultraviolet light, particularly from sunlight
- Smoking can trigger flares and as well as increase their severity
- Certain medications
- Chemical exposure to toxins like trichloroethylene in well water and silica dust
How can you care for yourself when you have lupus?
Self-care not only helps you effectively manage your symptoms and limit flares, but also can lead to an overall improved quality of life. Here are seven tips to get you started:
Prioritize rest and sleep
- Get plenty of rest, aiming for 7-9 hours of sleep each night.
- Pace yourself and take short breaks from your usual activities.
- If you think that depression or anxiety is making you feel more tired, talk to your doctor, a mental health professional or both.
Manage stress
- Practice stress-reducing techniques such as meditation, yoga and deep breathing.
- Ask others for help. Do not try to do everything yourself.
- Engage in lupus-safe activities that you enjoy or try a new hobby.
Maintain a healthy lifestyle
- A daily walk or swim, for example, can lower stress, clear your head, improve your mood, and help fight tiredness.
- Do not smoke. If you need help quitting, talk to your doctor about smoking cessation programs and medicines.
- Eat a healthy, balanced diet that includes whole grains, dairy, fruits and vegetables, and protein. Eat a variety of foods from each of those groups so you get all the nutrients you need.
Protect your skin
- Ask your doctor about the use of corticosteroid creams for skin symptoms.
- Limit sun exposure, especially when rays are the strongest. If you must be in the sun, cover your arms and legs and wear a hat.
- Use a broad spectrum sunscreen with an SPF 50 or higher. Reapply after swimming, sweating, or toweling off.
Adhere to medication and treatment plans
- Take your medicines exactly as prescribed.
- Avoid infections such as COVID-19, colds and the flu. Talk with your doctor about any vaccines you may need, including COVID-19, flu and pneumococcal vaccines.
- Stay current on check-ups and exams with all of your medical providers.
Create a support system
- Surround yourself with encouraging family members, friends and health professionals.
- Educate your loved ones about lupus to foster awareness and understanding.
Stay informed
- Learn as much as you can about lupus, including symptoms, triggers, treatments and self-care strategies.
- Advocate for yourself by regularly communicating your needs and concerns to your healthcare providers.
Although there is no cure for lupus, with the proper treatments and self-care plans in place, individuals can lessen the severity of their flares and lead fulfilling lives. Rheumatology care is available at our Parkview Regional Medical Center campus. To establish care with one of our providers, call 260-266-8820.
